Wilms Tumor Educational Literature (List)

Educational Literature

Young boy diagnosed with Wilms Tumor recieving chemotherapy treatment with oncologist after relapsing from stage 4 Wilms Tumor also known as nephroblastoma, childhood kidney cancer or pediatric renal cancer.

What's on this page:

Explore the Wilms Cancer Foundation's educational literature library, a growing collection of evidence-based resources designed to support parents, caregivers, healthcare professionals, researchers, and advocates affected by Wilms tumor and childhood kidney cancer. From patient guides and clinical briefings to survivorship resources, nutrition information, and awareness materials, these publications provide trusted information to help improve understanding, support informed decision-making, and promote better outcomes throughout every stage of the Wilms tumor journey.

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Wilms Tumor Educational Literature

The Wilms Cancer Foundation (WCF) Educational Literature Library provides access to a growing collection of evidence-based publications, educational resources, clinical briefings, patient guides, survivorship materials, and advocacy documents dedicated to Wilms tumor and childhood kidney cancer. Developed to support families, healthcare professionals, researchers, policymakers, and advocacy organizations, these resources help improve understanding of the disease, promote informed decision-making, and support better outcomes across every stage of the childhood cancer journey.

As part of its ongoing commitment to improving global childhood cancer outcomes, the Wilms Cancer Foundation has worked alongside the World Health Organization (WHO) under the Global Initiative for Childhood Cancer (GICC) framework to support awareness, education, early diagnosis, survivorship, and healthcare capacity-building initiatives. The Foundation's educational literature reflects this commitment by providing trusted information that aligns with broader international efforts to improve access to knowledge, strengthen healthcare systems, and help ensure that more children affected by Wilms tumor receive timely diagnosis, effective treatment, and long-term support worldwide.

Note: This database is intended to provide supplementary information relating to Wilms tumor (or Nephroblastoma). The Wilms Cancer Foundation makes no claims and, takes no responsibility for any or all the claims and/ or information contained on third-party sites. Under international copyright laws documentation produced by the Wilms Cancer Foundation (WCF) may not be copied, photocopied, reproduced, or translated, in whole or in part, without the prior written consent of the Wilms Cancer Foundation.

Educational Literature

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WCF (Briefing 2.2b - A Plain Speaking Guide for Caregivers

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WCF (Briefing 6.1a -Pediatric Surveillance & Follow-up Guidelines)

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Briefing (Series 1.3a)

Pediatric Renal Cancer/ (Disease & Support)

This briefing is designed to provide a clear, accessible introduction to both the mission of the Wilms Cancer Foundation and the medical context it serves. It offers a concise overview of Wilms tumor - a rare form of childhood kidney cancer—outlining its nature, impact on families, and the importance of early detection and coordinated care.

It also introduces the Wilms Cancer Foundation’s role in advancing awareness, supporting affected children and families, and fostering global collaboration in research and treatment. Together, these elements establish the foundation’s purpose within the broader effort to improve outcomes and quality of life for children facing this disease.

This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).

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Briefing (Series 2.2b)

Disease, Symptoms, Treatment and Support.

This document is designed to provide a clear, accessible introduction and overview of Wilms tumor—a rare form of childhood kidney cancer - outlining its nature, impact on families, and the importance of early detection and coordinated care.

Key Highlights include:

a) Disease:

b) Symptoms;

c) Treatment;

d) Support;

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Briefing (Series 2.2a)

Early Diagnosis & Long-term Outlook

(A Plain Language Guide for Parents and Caregivers)

This briefing provides a plain-language overview of early diagnosis and long-term outlooks for Wilms tumor, designed specifically for parents and caregivers. It outlines how the disease is identified, including screening practices and step-by-step diagnostic processes, while also explaining what signs to look for and key safety considerations. The document further supports families by highlighting important questions to ask healthcare providers and offering a clear, practical understanding of what to expect throughout diagnosis and beyond.

Key Highlights include:

a) One Page Summary for Caregivers:

b) Screening;

c) Diagnosis (Step by Step);

d) How Wilms Tumor is Detected;

e) Important Safety Point;

f) What to Ask your Child’s Doctor.

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Briefing (Series 2.2a)

A Plain Language Guide for Parents and Caregivers

This briefing provides a plain-language overview of Wilms tumor, designed specifically for parents and caregivers. It outlines how the disease is identified, including screening practices and step-by-step diagnostic processes, while also explaining what signs to look for and key safety considerations. The document further supports families by highlighting important questions to ask healthcare providers and offering a clear, practical understanding of what to expect throughout diagnosis and beyond.

Key Highlights include:

a) Summary for Caregivers:

b) Screening;

c) What to ask your Child’s Doctor;

d) Diagnosis (Step by Step);

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Briefing (Series 5.7a)

Pediatric Renal Cancer/ (Disease, Symptoms, Treatment and Support)

This briefing provides an accessible overview of pediatric renal cancers, including Wilms tumor, with a focus on both medical understanding and family support. It outlines the core elements of the disease - symptoms, diagnosis, and treatment - while also addressing the broader challenges families may face during and after care. Designed to inform and guide, the document highlights available support pathways and offers practical insight to help caregivers navigate the medical and emotional aspects of a child’s cancer journey.

Key Highlights include:

a) Disease;

b) Symptoms;

c) Treatment;

d) Challenges Ahead;

e) Support.

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Briefing (Series 6.1a)

Surveillance & Follow-up Guidelines

Standard & High-Risk Pediatric Renal Tumor (Wilms)

This briefing provides a clear overview of post-treatment surveillance and follow-up care for pediatric renal cancer, specifically Wilms tumor. It outlines the purpose and objectives of ongoing monitoring, explains key definitions, and distinguishes between standard - and high-risk follow-up protocols. Designed to support caregivers and stakeholders, the document offers practical guidance on how long-term care is structured to detect recurrence early and ensure the best possible outcomes for children.

Key Highlights include:

a) Objectives of Surveillance;

b) Definitions.

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Briefing (Series 6.2a)

Wilms Tumor Relapse

Factors, Treatment Options & Long-term Care

This briefing provides a focused overview of relapse in Wilms tumor, explaining why and when relapse may occur, as well as the key factors that influence risk. It outlines current treatment options and the structure of long-term follow-up care, offering caregivers a clear understanding of how relapse is managed and monitored. Designed to be both informative and practical, the document supports families in navigating the complexities of recurrence and ongoing care.

Key Highlights include:

a) Why Relapse Occurs;

b) When Relapse Occurs;

c) Factors Affecting Relapse Risk;

d) Treatment Options;

e) Long-term follow-up Care.

What other Resources you need to know about

Advocacy Resources

Awareness Campaigns

Explore the Wilms Cancer Foundations catalog of awareness campaigns, reciprocal links and icons, etc. in support of Wilms Tumor.

Access the Wilms Cancer foundations awareness campaigns

Support Resources

Treatment Centres

Find contact information on pediatric oncology/ childhood cancer treatment centres & clinics around the world for professional support on Wlms tumor (nephroblastoma).

Access the Wilms Cancer Foundations treatment centre database

Useful Links & External Resources

Find links to third resources (support groups, imformation hubs, programs, etc) for children, parents, caregivers and healthcare professionals tackling Wilms Tumor (nephroblastoma).

Access useful links &external resources

Support Programs

Find support programs for children, parents, caregivers and healthcare professionals tackling Wilms Tumor (nephroblastoma).

Access support programs database

Educational Videos

Learn about Wilms Cancer Foundations educational video library in support of the WHO and Global Initiative for Childhood Cancer to support patients, parents & caregivers tackling Wilms Tumor (nephroblastoma).

Patient Resources

Patient Interviews

Watch patient interviews for candid views on diagnosis, treatment, relapse, recovery, long-term effects, etc. of Wilms Tumor on the Wilms Cancer Foundations dedicated video channel.

Watch patient interviews

Patient Experiences

Hear about real patient & caregiver experiences from diagnosis, treatment, relapse, recovery and post treatment care of Wilms Tumor (nephroblastoma).

Explore patient experiences

Patient Groups (for Children)

Active patient engagement and peer groups (Wilms Warriors) to help children connect with others with Wilms Tumor (nephroblastoma).

Access patient groups & forums for children

Parents & Caregiver Resources

Parent Interviews

Watch parent interviews for candid views on diagnosis, treatment, relapse, recovery, long-term effects, etc. of Wilms Tumor on the Wilms Cancer Foundations dedicated video channel.

Watch parent interviews

Parent Experiences

Hear about real parent & caregiver experiences from diagnosis, treatment, relapse, recovery and post treatment care of Wilms Tumor (nephroblastoma).

Explore parent experiences

Parent Groups

WIlms Tumor online parent groups (Wilms Support Network) and forums to connect and share issues related to Wilms Tumor (nephroblastoma).

Access parent groups & forums for parent & caregivers

Resource Hub

Small nutritional changes can make a big difference
Supporting your child’s nutrition is one of the most important ways you can help during treatment.