Wilms Cancer Foundation
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Defeating Childhood Kidney Cancer
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Wilms Tumor in Children: Symptoms, Diagnosis, Treatment, Survival, Relapse & Pediatric Renal Cancer Support including the 'Global Guide to Wilms Tumor'
A comprehensive free global resource for Wilms tumor (nephroblastoma) and childhood kidney cancer, providing expert-guided information on symptoms, diagnosis, staging, treatment, relapse, survivorship, clinical trials, nutrition, patient stories, & support resources for children, parents, caregivers, and healthcare communities.
Wilms Cancer Foundation About Us
Child in hospital receiving Wilms tumor treatment including chemotherapy, nephrectomy, lobectomy, and stem cell transplant
Young boy in hospital bed recovering from Wilms tumor chemotherapy, nephrectomy, and stem cell transplant
Wilms tumor patient recovering from nephrectomy surgery to remove Wilms tumor and kidney
Child in hospital receiving Wilms tumor treatment including chemotherapy, nephrectomy, lobectomy, and stem cell transplant
Who are we
The Wilms Cancer Foundation (WCF), is a charitable organization, that supports and represents the needs of children, families and healthcare organizations affected by the childhood kidney cancer nephroblastoma commonly known as ‘Wilms’.
Mission
To establish an international program of awareness, education, advocacy, early detection and treatment to tackle the spread of childhood kidney cancer. We also seek to support children, families and organizations as they tackle cancer on a daily basis, through initiatives such as our ‘Dream-Making’ program, to lighten the emotional and financial burden they face.
Making a Difference
The WCF is a leader in paediatric/ childhood kidney cancer information and care. It is an official partner (non-state actor) with the World Health Organization (WHO), a member of the International Kidney Cancer Coalition, the International Society of Paediatric Oncology, a founding member of the Pediatric Renal Tumor Coalition and a working partner of numerous national and internationally based kidney cancer charities in low, middle and higher income countries. The organization is guided by a scientific advisory board consisting of the worlds leading practitioners in paediatric renal oncology from North America, the United Kingdom, Europe and Latin America. It is the only charitable organization, worldwide, with a specific focus on paediatric renal cancer and is reliant on the charitable donations it receives in order to deliver its programs including; advocacy, education, treatment, research and support.
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Purpose
From the outset the Wilms Cancer Foundations central purpose has been quite bold:
"to raise awareness on this tragic disease in order to eradicate the pain and heartache unnecessarily suffered by so many".
While it seems like a daunting task, it is one that we believe 'is' ultimately achievable.
Education
Through a program of universal education and awareness we seek to shed light on the condition in order to ensure that advanced early screening for the disease becomes mandatory.
By lobbying government and healthcare sectors at local, regional and national levels we can make early detection of Wilms in children standard-procedure and, not only save lives but avoid the tragic circumstances that children like William and his family are forced to endure.
Importantly, a simple early detection test would free-up the healthcare sector and save millions of dollars in medical and insurance expenses. Valuable time and money that can be used elsewhere.
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Research
We also look to lobby for increased research funding in order to find new ways of removing the risk of diagnosis.
Cancer is a troubling prospect but advances in medical research are putting the possibility of eradicating certain conditions within reach. We want to ensure that 'Wilms' is one of them.
Supporting Children and Families
For those who are suffering we seek to relieve the heavy emotional and financial burden that diagnosis and often protracted treatment can bring.
If you are a parent, stress, depression, bereavement, these are all issues that have to be dealt with on-top of a child's medical condition and outcome.
In addition, suddenly, 100% of their time is taken up in caring for a son or a daughter depriving families of the ability to make money and creating an inability to pay even the most essential bill's (mortgage payments, car payments, basic living expenses (like electricity and gas, even food itself) become a desperate challenge.
Even in post-treatment hidden challenges exist such as finding work, ongoing travel costs for testing, tutoring due to lost school time, counselling, debt management and loss of credit rating, etc.
However, these can all be addressed and overcome.
Goals
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Universal education at a local, regional and national level to raise awareness of the childhood kidney cancer 'Wilms'.
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Lobbying healthcare and government sectors to introduce mandatory early screening and detection of 'Wilms'.
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Promoting change, innovation and the prioritizing of new drug development within the medical research industry to counter the spread of 'Wilms'
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Relieving the emotional and financial burden suffered by children and families diagnosed with Wilms throughout North America.
About Us
The Wilms Cancer Foundation's mission is to support children, parents & healthcare workers tackling WIlms tumor.