Wilms Cancer Foundation
Defeating Childhood Kidney Cancer
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Wilms Tumor in Children: Symptoms, Diagnosis, Treatment, Survival, Relapse & Pediatric Renal Cancer Support including the 'Complete Guide to Wilms Tumor'
A comprehensive free global resource for Wilms tumor (nephroblastoma) and childhood kidney cancer, providing expert-guided information on symptoms, diagnosis, staging, treatment, relapse, survivorship, clinical trials, nutrition, patient stories, & support resources for children, parents, caregivers, and healthcare communities.
Resources (Overview)
What's on this page:
Learn more about Wilms Foundation resources, including educational publications, patient and parent support groups, survivorship resources, awareness materials, social media platforms, video libraries, and trusted childhood cancer information links. These resources are designed to help children, families, caregivers, healthcare professionals, and supporters access guidance, community support, advocacy tools, and reliable information throughout the Wilms tumor journey.
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Publications;
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Useful links
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Learn More & Get Support.
Accessing Wilms Tumor Resources
This database is intended to provide supplementary information relating to Wilms tumor (or Nephroblastoma).
The Wilms Cancer Foundation makes no claims and, takes no responsibility for any or all the claims and/ or information contained on third-party sites.
Under international copyright laws documentation produced by the Wilms Cancer Foundation (WCF) may not be copied, photocopied, reproduced, or translated, in whole or in part, without the prior written consent of the Wilms Cancer Foundation.
Educational Literature
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Briefing (Series 1.3a)
Pediatric Renal Cancer/ (Disease & Support)
This briefing is designed to provide a clear, accessible introduction to both the mission of the Wilms Cancer Foundation and the medical context it serves. It offers a concise overview of Wilms tumor - a rare form of childhood kidney cancer—outlining its nature, impact on families, and the importance of early detection and coordinated care.
It also introduces the Wilms Cancer Foundation’s role in advancing awareness, supporting affected children and families, and fostering global collaboration in research and treatment. Together, these elements establish the foundation’s purpose within the broader effort to improve outcomes and quality of life for children facing this disease.
This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).
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Briefing (Series 2.2b)
Disease, Symptoms, Treatment and Support.
This document is designed to provide a clear, accessible introduction and overview of Wilms tumor—a rare form of childhood kidney cancer - outlining its nature, impact on families, and the importance of early detection and coordinated care.
Key Highlights include:
a) Disease:
b) Symptoms;
c) Treatment;
d) Support;
This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).
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Briefing (Series 2.2a)
Early Diagnosis & Long-term Outlook
(A Plain Language Guide for Parents and Caregivers)
This briefing provides a plain-language overview of early diagnosis and long-term outlooks for Wilms tumor, designed specifically for parents and caregivers. It outlines how the disease is identified, including screening practices and step-by-step diagnostic processes, while also explaining what signs to look for and key safety considerations. The document further supports families by highlighting important questions to ask healthcare providers and offering a clear, practical understanding of what to expect throughout diagnosis and beyond.
Key Highlights include:
a) One Page Summary for Caregivers:
b) Screening;
c) Diagnosis (Step by Step);
d) How Wilms Tumor is Detected;
e) Important Safety Point;
f) What to Ask your Child’s Doctor.
This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).
Click to View/ Download
Briefing (Series 2.2a)
A Plain Language Guide for Parents and Caregivers
This briefing provides a plain-language overview of Wilms tumor, designed specifically for parents and caregivers. It outlines how the disease is identified, including screening practices and step-by-step diagnostic processes, while also explaining what signs to look for and key safety considerations. The document further supports families by highlighting important questions to ask healthcare providers and offering a clear, practical understanding of what to expect throughout diagnosis and beyond.
Key Highlights include:
a) Summary for Caregivers:
b) Screening;
c) What to ask your Child’s Doctor;
d) Diagnosis (Step by Step);
This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).
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Click to View/ Download
Briefing (Series 5.7a)
Pediatric Renal Cancer/ (Disease, Symptoms, Treatment and Support)
This briefing provides an accessible overview of pediatric renal cancers, including Wilms tumor, with a focus on both medical understanding and family support. It outlines the core elements of the disease - symptoms, diagnosis, and treatment - while also addressing the broader challenges families may face during and after care. Designed to inform and guide, the document highlights available support pathways and offers practical insight to help caregivers navigate the medical and emotional aspects of a child’s cancer journey.
Key Highlights include:
a) Disease;
b) Symptoms;
c) Treatment;
d) Challenges Ahead;
e) Support.
This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).
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Click to View/ Download
Briefing (Series 6.1a)
Surveillance & Follow-up Guidelines
Standard & High-Risk Pediatric Renal Tumor (Wilms)
This briefing provides a clear overview of post-treatment surveillance and follow-up care for pediatric renal cancer, specifically Wilms tumor. It outlines the purpose and objectives of ongoing monitoring, explains key definitions, and distinguishes between standard - and high-risk follow-up protocols. Designed to support caregivers and stakeholders, the document offers practical guidance on how long-term care is structured to detect recurrence early and ensure the best possible outcomes for children.
Key Highlights include:
a) Objectives of Surveillance;
b) Definitions.
This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).
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Click to View/ Download
Briefing (Series 6.2a)
Wilms Tumor Relapse
Factors, Treatment Options & Long-term Care
This briefing provides a focused overview of relapse in Wilms tumor, explaining why and when relapse may occur, as well as the key factors that influence risk. It outlines current treatment options and the structure of long-term follow-up care, offering caregivers a clear understanding of how relapse is managed and monitored. Designed to be both informative and practical, the document supports families in navigating the complexities of recurrence and ongoing care.
Key Highlights include:
a) Why Relapse Occurs;
b) When Relapse Occurs;
c) Factors Affecting Relapse Risk;
d) Treatment Options;
e) Long-term follow-up Care.
This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).
Useful Links
Governing Bodies and Organizations
Clinical Trials
MSK Kids: Wilms Tumor Clinical Trials and Research
University of California San Fransisco: Wilms Tumor Clinical Trials at UCSF
ClinicalTrails.gov: Recurrent WIlms
ClinicalTrails.gov: Bio-Markers
Google Scholar: Wilms Clinical Trials
Research Papers and Study's
StatPearls: Wilms Tumor
Google Scholar: Wilms Research Papers
Support
Wilms Tumor Support Group (Facebook): Emotional Support
Wilms Tumor Survivors Late Effects (Facebook): Emotional Support
Wilms Tumors (Facebook): Emotional Support
CancerCare: Financial Support
Family Reach: Financial Support
Firsthand Foundation: Financial Support
National Children's Cancer Society: Financial Support
United Healthcare Children's Foundation: Financial Support
Compass to Care: Travel
Miracle Flights for Kids: Travel
Children's Oncology Group: www.childrensoncologygroup.org
National Kidney Foundation: www.kidney.org
Kidney Cancer Canada: www.kidneycancercanada.ca
Urology Care Foundation: www.urologyhealth.org
National Cancer Institute: www.cancer.gov
Dana Farber Institute: www.dana-farber.org
American Childhood Cancer Organization: www.acco.org
Kids Health: www.kidshealth.org
Children's National: www.childrensnational.org
National Centre for Biotechnology Information: www.ncbi.nlm.nih.gov
National Paediatric Cancer Foundation: www.nationalpcf.org
Cancer Care: www.cancercare.org
Lung Cancer Care: www.lungcancercenter.com
Respiratory: www.mesothelioma.net/mesothelioma
Publications
Cancer Care: Talking to children when a loved one has cancer
Cancer Care: Support resources for children and teens
Covid-19 Precautions
Asbestos.com: Covid-19 precautions for cancer patients
General Information
Wikpedia: Wilms Tumor
Mayo Clinic: Wilms Tumor
American Cancer Society: About Wilms Tumor
Healthline: Wilms Tumor
Cancer.net: Wilms Tumors - Childhood Introduction
Google Scholar: Wilms
National Study Links
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What other Resources you need to know about
Awareness Campaigns
Explore the Wilms Cancer Foundations catalog of awareness campaigns in support of Wilms Tumor.
Access the Wilms Cancer foundations awareness campaigns
Educational Literature
Learn about Wilms Cancer Foundations educational literature in partnership with the WHO in support of the Global Initiative for Childhood Cancer and patients, parents & caregivers tackling Wilms Tumor (nephroblastoma).
Read more and gain access to educational literature (fact sheets, briefings, reports, etc.)
Treatment Centres
Find contact information on pediatric oncology/ childhood cancer treatment centres & clinics around the world for professional support on Wlms tumor (nephroblastoma).
Access the Wilms Cancer Foundations treatment centre database
Support Programs
Find support programs for children, parents, caregivers and healthcare professionals tackling Wilms Tumor (nephroblastoma).
Access support programs database
Patients
Patient Interviews
Watch patient interviews for candid views on diagnosis, treatment, relapse, recovery, long-term effects, etc. of Wilms Tumor on the Wilms Cancer Foundations dedicated video channel.
Watch patient interviews
Patient Experiences
Hear about real patient & caregiver experiences from diagnosis, treatment, relapse, recovery and post treatment care of Wilms Tumor (nephroblastoma).
Explore patient experiences
Patient Groups (for Children)
Active patient engagement and peer groups (Wilms Warriors) to help children connect with others with Wilms Tumor (nephroblastoma).
Access patient groups & forums for children
Parents & Caregivers
Parent Interviews
Watch parent interviews for candid views on diagnosis, treatment, relapse, recovery, long-term effects, etc. of Wilms Tumor on the Wilms Cancer Foundations dedicated video channel.
Watch parent interviews
Parent Experiences
Hear about real parent & caregiver experiences from diagnosis, treatment, relapse, recovery and post treatment care of Wilms Tumor (nephroblastoma).
Explore parent experiences
Parent Groups
WIlms Tumor online parent groups (Wilms Support Network) and forums to connect and share issues related to Wilms Tumor (nephroblastoma).
Access parent groups & forums for parent & caregivers
Partnership
WHO Global Initiative for Childhood Cancer (GICC)
Learn about the World Health Organizations partnership with the Wilms Cancer Foundation and there work together.
Read more about the WHO's Global initiative for Childhood Cancer
Parent & Caregiver Support
Education and awareness are the best ways to deal with a Wilms tumor diagnosis and the treatment that follows.