Wilms Cancer Foundation
Defeating Childhood Kidney Cancer
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Wilms Tumor (Nephroblastoma) in Children: Symptoms, Diagnosis, Treatment, Survival, Relapse, Long-term Effects & Childhood Kidney Cancer Support
The international Wilms tumor charity website of the Wilms Cancer Foundation providing the world's most comprehensive free resource dedicated to Wilms tumor (nephroblastoma) and childhood kidney cancer, featuring evidence-based information on symptoms, diagnosis, staging, treatment, surgery, chemotherapy, radiation therapy, relapse, survivorship, long-term effects, clinical trials, patient support, nutrition, and family resources for children, parents, caregivers, survivors, healthcare professionals, and childhood cancer communities worldwide.
Wilms Tumor Guide for Parents & Caregivers
What's on this page:
Learn More About Wilms Tumor: A Plain-Language Guide for Parents and Caregivers. Understand Wilms tumor (nephroblastoma) with this plain-language WCF educational guide created specifically for parents and caregivers of children with childhood kidney cancer. Explore Wilms tumor screening and diagnosis, what families can expect during the diagnostic process, and important questions to ask your child’s healthcare team as you navigate diagnosis and care.
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Educational Literature: Wilms Tumor Guide for Parents & Caregivers
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Briefing (Series 2.2b)
A Plain Language Guide for Parents and Caregivers
This briefing provides a plain-language overview of Wilms tumor, designed specifically for parents and caregivers. It outlines how the disease is identified, including screening practices and step-by-step diagnostic processes, while also explaining what signs to look for and key safety considerations. The document further supports families by highlighting important questions to ask healthcare providers and offering a clear, practical understanding of what to expect throughout diagnosis and beyond.
Key Highlights include:
a) Summary for Caregivers:
b) Screening;
c) What to ask your Child’s Doctor;
d) Diagnosis (Step by Step);
This WCF guide is for educational purposes only and is released as part of the World Health Organizations (WHO) Global initiative for Childhood Cancer (GICC). It is based on international pediatric oncology standards in Canada, the United States and Europe. Seek advice from a qualified medical professional should you have any concerns or questions. © World Health Organization (WHO). Used with permission in collaboration with the Wilms Cancer Foundation (WCF). “CureAll” is part of the WHO Global Initiative for Childhood Cancer (GICC).
Available languages via the WCF:
English | Français | Deutsch | Español | Português | فارسی | العربية | हिन्दी | 中文 | 한국어
Also available via the World Health Organization (WHO) Knowledge Action Portal:
English | Français | Deutsch | Español | Português | فارسی | العربية | हिन्दी | 中文 | 한국어
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What other Resources you need to know about
Advocacy Resources
Awareness Campaigns
Explore the Wilms Cancer Foundations catalog of awareness campaigns, reciprocal links and icons, etc. in support of Wilms Tumor.
Access the Wilms Cancer foundations awareness campaigns
Support Resources
Treatment Centres
Find contact information on pediatric oncology/ childhood cancer treatment centres & clinics around the world for professional support on Wlms tumor (nephroblastoma).
Access the Wilms Cancer Foundations treatment centre database
Useful Links & External Resources
Find links to third resources (support groups, imformation hubs, programs, etc) for children, parents, caregivers and healthcare professionals tackling Wilms Tumor (nephroblastoma).
Access useful links &external resources
Support Programs
Find support programs for children, parents, caregivers and healthcare professionals tackling Wilms Tumor (nephroblastoma).
Access support programs database
Educational Videos
Learn about Wilms Cancer Foundations educational video library in support of the WHO and Global Initiative for Childhood Cancer to support patients, parents & caregivers tackling Wilms Tumor (nephroblastoma).
Read more and gain access to educational literature (fact sheets, briefings, reports, etc.)
Patient Resources
Patient Interviews
Watch patient interviews for candid views on diagnosis, treatment, relapse, recovery, long-term effects, etc. of Wilms Tumor on the Wilms Cancer Foundations dedicated video channel.
Patient Experiences
Hear about real patient & caregiver experiences from diagnosis, treatment, relapse, recovery and post treatment care of Wilms Tumor (nephroblastoma).
Patient Groups (for Children)
Active patient engagement and peer groups (Wilms Warriors) to help children connect with others with Wilms Tumor (nephroblastoma).
Access patient groups & forums for children
Parents & Caregiver Resources
Parent Interviews
Watch parent interviews for candid views on diagnosis, treatment, relapse, recovery, long-term effects, etc. of Wilms Tumor on the Wilms Cancer Foundations dedicated video channel.
Watch parent interviews
Parent Experiences
Hear about real parent & caregiver experiences from diagnosis, treatment, relapse, recovery and post treatment care of Wilms Tumor (nephroblastoma).
Explore parent experiences
Parent Groups
WIlms Tumor online parent groups (Wilms Support Network) and forums to connect and share issues related to Wilms Tumor (nephroblastoma).
Access parent groups & forums for parent & caregivers
Parent & Caregiver Tip
Ask your child's healthcare team to explain the exact type of kidney tumor, how the diagnosis was established and which specialists will be involved in planning treatment and supporting your family.