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Privacy/ Terms & Conditions

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Wilms Tumor, Nephroblastoma Cancer Information, Research, Statistics & Support

Storage and use of data

The Wilms Cancer Foundation respects the privacy of individuals and organizations using and engaging in its programs and  services.

Through the course of our initiatives we seek to develop a better understanding of our supporters through their personal data which allows us to make more informed decisions, fundraise more efficiently and helps us to reach our ultimate goal of supporting childhood kidney cancer patients and their families.

In pursuit of this we are committed to safeguarding the privacy of the children and families of those suffering from the disease as well as those of the  organizations and individuals supporting our work while providing a personalized and valuable service to support our various programs of advocacy, education, treatment, early detection and the provision of financial & emotional support.

Privacy and Data Protection

WCF are committed to respecting your privacy and will take all reasonable steps to process information about you in accordance with General Data Protection Regulations. The purpose of this privacy policy is to inform you about what information we collect, how we use the information, whether the information is disclosed, and the ways in which we protect your privacy.

1. Privacy


Should we ask you to provide certain information when dealing with us, you can be assured that it will only be used in accordance with this privacy statement. If you have any queries about this privacy policy, please contact us directly at

How do we collect information

We obtain personal information about you when you register for our services or patient registry, send an electronic enquiry, make a donation to us, use our telephone helpline or forum, enquire about our activities, complete feedback forms or surveys, or otherwise provide us with personal information. We may also receive information from third parties, such as family or friends.

Consent for the collection and use of personal information

By registering to join the WCF or to use our services, and providing us with your personal information, including information about the health and care of yourself, family member or other individual, you consent to the collection and use of this information in accordance with this privacy policy. You can withdraw your consent at any time and for any reason by contacting us with your instructions and your personal information will be deleted from our database.

What information do we collect about you

Personal information we may hold could include: name and date of birth, contact information, such as email address, postal address and telephone number, health information about your cancer experience or the experience of a relative, friend or loved one, information you provide regarding your personal situation in order to receive support or information. We also gather information about the use of our website, such as pages most visited and activities of most interest to users. We may use this information to make improvements to our website and to ensure we provide a user-friendly service. This information is anonymous and does not identify individual users of our website.

What we do with the information we gather

We will use this information: to help us understand your needs, to provide you with the services, materials or information you have requested, to help us provide you with a better service. We may use the information you provide for various operational purposes including the provision of this information to third parties, unless we have your express direction not to do so. We may contact you by email, or mail. If you do not want us to contact you, please contact us clearly stating that you wish to opt out of any communications from us. We will hold your information for as long as is required to continue to provide you with our services, or until you ask us to delete it, withdraw your consent for us to hold your information, or ‘unsubscribe’, etc.

Patient registry

If you register or apply for financial support you will be providing personal information through the registration process and completion of a personal health profile. Only WCF will have access to this personal information and health profile. All data held in the patient registry will be stored on a securely. Information stored in the patient registry may be used in research studies to assess how patients are treated and cared for. This information will eventually be used to help improve cancer services and access to treatments, which will ultimately lead to an improvement in the quality of life of kidney cancer patients.

Telephone helpline

If you call our helpline, you may choose to provide details of a personal or medical nature. If you choose to provide personal information, details will be stored on a securely.

Website forum

Our knowledge forum is moderated for any commercially sensitive, inappropriate, or defamatory comments, which, if found, will be dealt with in an appropriate manner. The posting of personal information on the knowledge forum means your information is publicly accessible to other WCF forum members. Please take care when posting personal information; we cannot be responsible for the privacy of any identifiable information that you choose to post in our online community.

Access to your personal information

You have the right to request a copy of all the personal information that we hold about you under General Data Protection Regulation (for which we may charge a small fee). If you believe any information we are holding about you is incorrect or incomplete, please contact us as soon as possible. We will endeavour to promptly correct any information found to be incorrect.

You have the right to request deletion of your personal information at any time and for any reason. If you wish to have your personal information removed from our database, or you want to receive a copy of the information that we hold, please contact us directly.

Security and links

In accordance with best practice, we have made every effort to safeguard and secure the personal information that we receive in order to prevent unauthorized access or disclosure. If you use standard email to communicate with us, including email links and email forms on this website, please be aware this may be routed via third party internet providers and may not be secure. Our website contains links to websites run by other organizations; we are not responsible for the privacy practices of these organizations and we do not have any control over third party websites. Therefore, we cannot be responsible for the protection and privacy of any information you provide whilst visiting other sites, and you should read their privacy policies carefully.

2. Cookie policy

This website uses cookies. Once you enter our website, you are deemed to have agreed to our cookie policy. By using this website and agreeing to this policy, you consent to the use of cookies in accordance with the terms of this policy.

What are cookies

Cookies are small text files sent by web servers and web browsers, which retrieve information about your visit to our site; for example, how you entered our site, how you navigated through the site, and what information was of interest to you. The information is sent back to the server and used to identify and track web browsers. The cookies identify you merely as a reference number. We do not record personal information.

Cookies on our website

Overall, cookies help us provide you with a better website, by enabling us to monitor which pages you find useful and which you do not. A cookie in no way gives us access to your computer or any information about you. Cookies help us improve our website to make it better and easier for you to use. We only use this information for statistical analysis purposes and to improve the services we provide.

How to refuse cookies

You can choose to accept or decline cookies at the time you enter our website. Most web browsers automatically accept cookies, but you can usually modify your browser’s privacy settings to alert you to cookies and to decline them if you prefer.

However, please note that if you choose to refuse cookies, you may not be able to use the full functionality of this website.

Terms and Conditions

By entering our website, you agree and are bound by the following terms and conditions:


This website is owned by the WCF. Any use made of this site is subject to these terms and conditions. WCF may, from time to time and at its sole discretion, update or revise these terms and conditions by amending the text on this page. We will notify you of any changes that are made to our website policies, and you should check this page to make sure you are happy with any changes made.

Use of the website

You agree to use this site only for lawful purposes, and in a manner which does not infringe the rights, or restrict, or inhibit the use and enjoyment of the site by any third party. Apart from the password-protected areas of this website, the information contained in this website is available for anyone to use for their own purposes, provided the information is not reproduced on any other website or used for commercial gain. No part of the website is to be copied, stored, or transmitted in any form without the written permission of WCF.


There are links to other websites from our website to increase the scope and usefulness of the information contained on our site, and which we hope you will find interesting. However, we are not responsible for the content of these websites, or the accuracy of the information they hold.


Our website provides general information only, and none of the information contained within our site shall be deemed to constitute medical advice in any way. You should seek appropriate medical advice or guidance from your doctor or health care team in relation to any medical condition.

Accuracy of the website

We have taken great care to ensure the content of this website is up-to-date and free from errors. However, we cannot guarantee that the information contained in this site will be completely error free, or that this site or the server that makes it available are free of viruses or bugs, or that defects will be identified and rectified. If you notice any defects or errors on our website, we would be grateful if you could contact us promptly.


Images and photographs

In order to protect the privacy of the individuals featured on the website, please do not download or distribute photographs or stories from our website without obtaining express written permission to do so from WCF. If we are made aware of such activity, you may be subject to legal action by WCF.

Monitoring and Reviews

This policy will be monitored by the WCF management team annually to judge its effectiveness, and will be updated in accordance with changes in the law as appropriate.


Any information provided by consultants, contractors, volunteers, trustees or members of the WCF or their families for monitoring purposes will be used only for these purposes, and will be dealt with in accordance with the General Data Protection Regulation.

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