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Useful Links & External Resources

Young boy diagnosed with Wilms Tumor recieving chemotherapy treatment with oncologist after relapsing from stage 4 Wilms Tumor also known as nephroblastoma, childhood kidney cancer or pediatric renal cancer.

​​​What's on this page:

Explore our collection of trusted Wilms tumor and childhood cancer resources, including support organizations, clinical trials, research databases, treatment centers, government agencies, financial assistance programs, and educational information from around the world.

  • Clincal Trials;

  • Research papers & Studaies;

  • Support;

  • Governing Bodies & Organizations;

  • Learn More & Get Support.

Useful Links & External Wilms Tumor Resource Hub​​

 

Welcome to the Wilms Cancer Foundation's Useful Links resource hub, a comprehensive directory of trusted organizations, institutions, and information sources relating to Wilms tumor (nephroblastoma), childhood kidney cancer, and pediatric oncology. This page has been created to help patients, parents, caregivers, survivors, healthcare professionals, researchers, and advocates quickly access reliable information and support from around the world.

Our curated collection includes links to leading childhood cancer organizations, pediatric cancer treatment centers, clinical trial registries, government health agencies, medical research databases, financial assistance programs, patient support services, survivorship resources, educational materials, and published scientific research papers. Whether you are looking for information about Wilms tumor symptoms, diagnosis, treatment options, relapse, long-term follow-up care, clinical trials, childhood cancer research, or financial support for families affected by cancer, these trusted resources can help you find the information and assistance you need.

As part of our commitment to improving awareness, education, and access to reliable information, the Wilms Cancer Foundation continually reviews and expands this directory to ensure families and healthcare professionals have access to some of the most authoritative Wilms tumor and childhood cancer resources available.

General Information​

 

Wikpedia: Wilms Tumor

Mayo Clinic: Wilms Tumor

American Cancer Society: About Wilms Tumor

Healthline: Wilms Tumor

Cancer.net: Wilms Tumors - Childhood Introduction

Google Scholar: Wilms

Clinical Trials​​

 

MSK Kids: Wilms Tumor Clinical Trials and Research

University of California San Fransisco: Wilms Tumor Clinical Trials at UCSF

ClinicalTrails.gov: Recurrent WIlms

ClinicalTrails.gov: Bio-Markers

Google Scholar: Wilms Clinical Trials

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Research Papers & Study's

 

StatPearls: Wilms Tumor

Google Scholar: Wilms Research Papers

Support

 

Wilms Tumor Support Group (Facebook): Emotional Support  

Wilms Tumor Survivors Late Effects (Facebook): Emotional Support

Wilms Tumors (Facebook): Emotional Support

CancerCare: Financial Support

Family Reach: Financial Support

Firsthand Foundation: Financial Support

National Children's Cancer Society: Financial Support

United Healthcare Children's Foundation: Financial Support

Compass to Care: Travel

Miracle Flights for Kids: Travel

Governing Bodies & Organizations

 

Children's Oncology Group: www.childrensoncologygroup.org

National Kidney Foundation: www.kidney.org

Kidney Cancer Canada: www.kidneycancercanada.ca

Urology Care Foundation: www.urologyhealth.org

National Cancer Institute: www.cancer.gov

Dana Farber Institute: www.dana-farber.org

American Childhood Cancer Organization: www.acco.org

Kids Health: www.kidshealth.org

Children's National: www.childrensnational.org

National Centre for Biotechnology Information: www.ncbi.nlm.nih.gov

National Paediatric Cancer Foundation: www.nationalpcf.org

Cancer Care: www.cancercare.org

Lung Cancer Care: www.lungcancercenter.com

Respiratory: www.mesothelioma.net/mesothelioma

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Publications

 

Cancer Care: Talking to children when a loved one has cancer

Cancer Care: Support resources for children and teens

Covid-19 Precautions

 

Asbestos.com: Covid-19 precautions for cancer patients

What other Resources you need to know about

Advocacy Resources

Awareness Campaigns

Explore the Wilms Cancer Foundations catalog of awareness campaigns, reciprocal links and icons, etc. in support of Wilms Tumor.

Access the Wilms Cancer foundations awareness campaigns

Support Resources

Treatment Centres

Find contact information on pediatric oncology/ childhood cancer treatment centres & clinics around the world for professional support on Wlms tumor (nephroblastoma).

Access the Wilms Cancer Foundations treatment centre database

Support Programs

Find support programs for children, parents, caregivers and healthcare professionals tackling Wilms Tumor (nephroblastoma).

Access support programs database

Educational Literature

Learn about Wilms Cancer Foundations educational literature in partnership with the WHO in support of the Global Initiative for Childhood Cancer and patients, parents & caregivers tackling Wilms Tumor (nephroblastoma).

Read more and gain access to educational literature (fact sheets, briefings, reports, etc.)

Educational Videos

Learn about Wilms Cancer Foundations educational video library in support of the WHO and Global Initiative for Childhood Cancer to support patients, parents & caregivers tackling Wilms Tumor (nephroblastoma).

Read more and gain access to educational literature (fact sheets, briefings, reports, etc.)

Patient Resources

Patient Interviews

Watch patient interviews for candid views on diagnosis, treatment, relapse, recovery, long-term effects, etc. of Wilms Tumor on the Wilms Cancer Foundations dedicated video channel.

Watch patient interviews

Patient Experiences

Hear about real patient & caregiver experiences from diagnosis, treatment, relapse, recovery and post treatment care of Wilms Tumor (nephroblastoma).

Explore patient experiences 

Patient Groups (for Children)

Active patient engagement and peer groups (Wilms Warriors) to help children connect with others with Wilms Tumor (nephroblastoma).

Access patient groups & forums for children 

Parents & Caregiver Resources

Parent Interviews

Watch parent interviews for candid views on diagnosis, treatment, relapse, recovery, long-term effects, etc. of Wilms Tumor on the Wilms Cancer Foundations dedicated video channel.

Watch parent interviews

Parent Experiences

Hear about real parent & caregiver experiences from diagnosis, treatment, relapse, recovery and post treatment care of Wilms Tumor (nephroblastoma).

Explore parent experiences

Parent Groups

WIlms Tumor online parent groups (Wilms Support Network) and forums to connect and share issues related to Wilms Tumor (nephroblastoma).

Access parent groups & forums for parent & caregivers

Maintain Open Communication With the Oncology Team
Promptly discussing new symptoms or concerns helps ensure children receive appropriate monitoring and care.

Help Improve Outcomes for Children Worldwide

 

Support the Wilms Cancer Foundation's work in childhood cancer awareness, education, survivorship support, psychosocial care, and global advocacy. Together we can help improve access to trusted information, strengthen early diagnosis initiatives, and support children and families affected by Wilms tumor around the world.

 

For more information, guidance, and support resources please review the links provided below (and our website) or contact us directly. 

 

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William would like to personally thank the following organizations for their previous and current support:

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Wilms Cancer Foundation

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Canada: Registered Charity: 756261939 BC0001

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