Partnerships & Collaborations (Overview)

Young boy diagnosed with Wilms Tumor recieving chemotherapy treatment with oncologist after relapsing from stage 4 Wilms Tumor also known as nephroblastoma, childhood kidney cancer or pediatric renal cancer.

What's on this page:

Learn more about Wilms Foundation resources, including educational publications, patient and parent support groups, survivorship resources, awareness materials, social media platforms, video libraries, and trusted childhood cancer information links. These resources are designed to help children, families, caregivers, healthcare professionals, and supporters access guidance, community support, advocacy tools, and reliable information throughout the Wilms tumor journey.

Awareness Campaigns'
Treatment Centre Directory;
Useful Links & External Resources;
Support Groups;
Educational Resources;
Patient Resources;
Parent & Caregiver Resources;
Useful links

Learn More & Get Support.

Wilms Cancer Foundation Resource Centre

Trusted Resources for Families, Healthcare Professionals, Researchers, and Advocates

Welcome to the Wilms Cancer Foundation (WCF) Resource Centre, a comprehensive knowledge hub providing access to trusted information, educational materials, support services, awareness initiatives, and community resources dedicated to Wilms tumor and childhood kidney cancer. Designed to support families, survivors, healthcare professionals, researchers, advocacy organizations, and policymakers, the Resource Centre brings together a wide range of resources to help individuals navigate every stage of the Wilms tumor journey.

Developed as part of the Foundation's Global Wilms Tumor Initiative (GWTI), the Resource Centre supports awareness, education, early diagnosis, treatment understanding, survivorship, healthcare capacity-building, and global advocacy efforts. Through its collaborative work with the World Health Organization (WHO) under the Global Initiative for Childhood Cancer (GICC) framework, the Foundation remains committed to improving access to information and support for children and families affected by Wilms tumor worldwide.

Building a Global Community of Knowledge and Support

The Wilms Cancer Foundation Resource Centre is more than a library of information - it is a growing global community resource designed to connect families, survivors, healthcare professionals, researchers, advocates, and organizations working toward a common goal: improving outcomes for children affected by Wilms tumor.

By bringing together trusted information, educational materials, support networks, personal experiences, and partner resources in a single location, the Foundation aims to help ensure that no family faces the Wilms tumor journey alone.

Awareness Campaigns

Explore global awareness campaigns designed to improve understanding of Wilms tumor, promote earlier diagnosis, support advocacy efforts, and increase public awareness of childhood kidney cancer.

Resources include:

Awareness initiatives
Public education campaigns
Advocacy materials
Awareness toolkits
Community engagement resources

Treatment Centre Directory

Access information on pediatric oncology and childhood cancer treatment centres around the world that provide care for children diagnosed with Wilms tumor.

Resources may include:

Children's hospitals
Pediatric cancer centres
Specialist treatment facilities
International treatment networks
Healthcare referral resources

Useful Links & External Resources

Explore a curated collection of trusted external resources, healthcare organizations, research institutions, charities, and support services that provide additional information relating to Wilms tumor and childhood cancer.

Resources include:

Healthcare organizations
Research institutions
Government resources
International childhood cancer programs
Professional associations

Support Groups

Connecting with others who understand the challenges of Wilms tumor can be an invaluable source of support.

This section provides access to support communities and peer networks for:

Parents and caregivers
Patients
Survivors
Families
Advocacy communities

Educational Literature Library

Access a growing collection of educational publications, patient guides, clinical briefings, survivorship resources, nutrition materials, and awareness documents developed to improve understanding of Wilms tumor and childhood kidney cancer.

Topics include:

Symptoms
Diagnosis
Treatment
Nutrition
Relapse
Survivorship
Long-term effects
Global childhood cancer issues

Educational Video Library

Watch educational videos designed to help families and healthcare professionals better understand Wilms tumor and the childhood cancer journey.

Video resources may include:

Disease education
Treatment explanations
Nutrition guidance
Survivorship education
Awareness presentations
Expert interviews

Patient Interviews

Hear directly from children and young people affected by Wilms tumor as they share their personal experiences, challenges, achievements, and perspectives throughout diagnosis, treatment, recovery, and survivorship.

These stories provide valuable insight, encouragement, and inspiration for other families facing similar experiences.

Parent & Caregiver Interviews

Parents and caregivers often possess unique perspectives and practical insights gained through supporting a child with Wilms tumor.

This section features interviews exploring:

Diagnosis experiences
Treatment journeys
Emotional challenges
Family life during treatment
Survivorship experiences
Advice for newly diagnosed families

Patient Discussion Groups

Patient discussion groups provide opportunities for children and young people affected by Wilms tumor to connect with others who understand their experiences.

These communities help encourage:

Peer support
Shared experiences
Social connection
Emotional wellbeing

Parent & Caregiver Discussion Groups

Parents and caregivers often benefit from connecting with others facing similar challenges.

Discussion groups provide opportunities to:

Share experiences
Exchange practical advice
Discuss treatment-related concerns
Access emotional support
Build community connections

Survivor Discussion Groups

Life after treatment can present unique challenges and opportunities. Survivor discussion groups help individuals connect with others who have experienced Wilms tumor and childhood cancer.

Topics may include:

Long-term health
Education
Employment
Fertility
Emotional wellbeing
Quality of life
Survivorship care

Partner Resources

The Wilms Cancer Foundation works alongside healthcare organizations, hospitals, charities, advocacy groups, researchers, and international stakeholders to improve outcomes for children affected by Wilms tumor.

This section provides access to resources developed by Foundation partners and collaborators, supporting:

Healthcare education
Awareness initiatives
Clinical information
Research dissemination
Global childhood cancer programs

What other Partnerships and Collaborations you need to know about

Partnerships Offering Resources

WHO Global Initiative for Childhood Cancer (GICC)

Learn about the World Health Organizations partnership with the Wilms Cancer Foundation and there work together.

International Kidney Cancer Coalition (IKCC)

Learn about the International Kidney Cancer Coalition (IKCC), an international group of organizations committed to fighting kidney cancer.

Childhood Cancer International (CCI)

Learn about CCI and their role in tackling childhood cancer andhow the CCIand the Wilms Cancer Foundation work together.

International Society of Pediatric Oncologists (SIOP & SIOP NA)

Learn about the International Society of Pediatric Oncologists and how their members work at the forefront of efforts to treat Wilms tumor around the world

Cancer Research UK (CRUK)

Learn about Cancer Research UK's efforts to combat Wilms Tumor in the United Kingdom (England, Scotland, Wales, Northern Ireland) and around the world.